Serena and my brother Billy in the sensory room at the NFB Convention
What's the sense of it all?! (no pun intended) In a civilized society, you might think, how could this happen? The following news story was forwarded to me by my sister-in-law, Carol Castellano, who is the national president of Parents of Blind Children. As some of you know, my neice, Serena was born in 1984, very premature (23.5 wks) and weighed 1 lb. 4 oz. She was in the NICU for 8 months, suffered pretty much any complication imaginable but I am happy to say was exclusively breastfeeding on discharge. Serena is now 26 years old and attending graduate school at Rutgers for her MSW. And yes, I almost forgot, she is totally blind. Why did I mention that last? Because my neice is leading a full and productive life. She was educated in her hometown through the public school system. Serena started reading braille in pre-school, learned to use a cane by grammer school. Even though she had an classroom aide in the lower grades, she graduated high school and lived away at college with no classroom aide or assistant what-so-ever! Among her many interests, Serena is a sports fanatic and music buff. So the article below, really hit home to me. It nearly ruined my whole day last Thursday as I cried most of the morning and was so emotional I could barely write....
National Federation of the Blind Successful in Returning Infant to Her Parents
"Family Reunited After Wrongful Seizure of Child "
Independence, Missouri (July 22, 2010):
The National Federation of the Blind (NFB) and its Missouri affiliate announced today that they have succeeded in a legal fight to bring a two-month-old infant, Mikaela Sinnett, home to her parents, Blake Sinnett and Erika Johnson of Independence. The NFB of Missouri hired an attorney to assist the couple after Mikaela was taken from them at Centerpoint Hospital almost immediately after she was born. For fifty-seven days the couple, both of whom are blind, were allowed to visit their child in foster care but were not allowed to bring her home. The sole reason given by Missouri’s Department of Social Services was that the couple was blind and could not properly care for Mikaela without the assistance of a sighted person twenty-four hours a day and seven days a week. An evidentiary hearing was scheduled for July 20, but at the last minute the state of Missouri dismissed the case against the couple.
Dr. Marc Maurer, President of the National Federation of the Blind, said: “The National Federation of the Blind is pleased that the state of Missouri has dismissed its case against Blake Sinnett and Erika Johnson and returned baby Mikaela to their care. Despite the fact that blind parents are successfully raising children across the nation, blind Americans continue to find that misconceptions and stereotypes about the capabilities of blind people too often result in hasty and unwarranted decisions to remove children from the custody of blind parents. The worst nightmare of parents everywhere—having a child taken away—is sadly part of the lives of too many blind parents. The National Federation of the Blind stands ready and willing to help state officials across the country understand how blind people use alternative techniques to care for their children. But the blind of America will not tolerate our children being taken from us.”
"We were and are outraged at the action of Centerpoint Hospital and the state of Missouri," said Gary Wunder, president of the National Federation of the Blind of Missouri. "Children's services have the job of protecting children from abuse and we have nothing but admiration for that work. Taking a child away because her parents are blind is an entirely different matter which violates state and federal law. We have gotten Mikaela back home, but we must fundamentally change a system that presumes the incompetence of blind parents and operates on a principle of guilty until proven innocent rather than the reverse. We cannot help but think that new parents who are blind in Missouri will avoid seeking medical and social services that they may need for fear that they will experience a similar ordeal. We can never give back the two months this family has lost, nor can we restore to Erika the joy of nursing her child that this separation has made impossible. What we can do is use their adversity to change the system that allowed this atrocity and educate the people who have mistakenly equated blindness with a lack of perception, intellect, and judgment."
On May 21, 2010, Erika and Blake went to Centerpoint Hospital, where Erika delivered Mikaela. When trying to nurse the baby for the first time, Erika asked for assistance from a nurse when she thought something was wrong. The nurse said that the baby was turning blue and helped reposition the baby, who then began to take nourishment. The nurse assured Erika that it was common for new mothers to need some instruction and that she was doing fine. Blake and Erika were therefore surprised when, some four hours later, they were met by a children's services worker who made inquiries about their vision; asked how they would feed, diaper, and supervise their child; and eventually decreed that Baby Mikaela would not be allowed to be discharged with her mother unless the social worker could be assured there would be constant supervision by someone with sight. On the recommendation of Missouri's Children's Protective Services, Mikaela was placed in foster care and one-hour visits were arranged for several times each week. When the National Federation of the Blind of Missouri determined that blindness was the only reason the child was taken by the state, the organization hired attorney Amy Coopman to handle the case. The National Federation of the Blind now has the option to file complaints with the Missouri Human Rights Commission and/or the federal Office for Civil Rights, as well as at least three options that can be pursued in the state’s courts.
The trauma to these poor people, I can only imagine. The separation and lost breastfeeding opportunity for this mom and baby....it just made me sick! (I did contact a consultant who is willing to help Erica initiate and enjoy some nursing again, if she so wishes)
My neice, Serena aspires to get married and have children, as is her right and privilage. She is by far one of the most intuitive women I have ever known, as many non-sighted people are, and would make a wonderful mom!. So we have to make sure that what happened to this couple, never happens again.
The abbreviation, “wwmd”, which is short for "What would Maria do?" was affectionately created by a mom in our weekly new mom support group. When a mom is struggling with an issue and poses it to the group (like taking a cue from a Hollywood director), someone exclaims, "wwmd" which is then followed by giggles, smiles and a few high-fives and all at my expense. (small price to pay for flattery!)
You see, often parents make the mistake of asking if,
I have an opinion on something in particular.
"I have an opinion on everything." is my standard response. Then one day a couple retorted with, "That's what we've heard!"
At first, I was shocked and a smidge embarrassed. But now I feel alot better because I've come to terms with it! Yes, admitting that I’ve got quite a well-deserved reputation!
So now, with that said, I'm putting it out there...here it is:
For those of you, who really want to know what I think
and really want to know what I would do, this blog is affectionately for you!
(self-proclaimed comedian & baby fanatic!)
I've had the pleasure of working with new moms and babies for over 20 years now. During that time, I have been referred to as: the Lactition, Mother Theresa of Breastfeeding, Baby Whisperer, Baby Guru, Boob Lady, Lactose Lady, Latch-Master and some which cannot and should not be mentioned! Anyway. you could say that I am considered the "Go-To-Girl" for any kind of issue related to babies. I am told that it's not just because I know my stuff but that I tell it like it is - uncensored and straight-up!